40+ YEARS OF HIV/AIDS RESEARCH IN THE US
phacs
voices
Audio, visual, and written stories from clinicians, researchers, and community members of the PHACS Network.
2005
The Pediatric HIV/AIDS Cohort Study Network is founded.
The PHACS Network conducts longitudinal cohort studies investigating the long-term effects of HIV and antiretroviral (ARV) medications in children and young adults who were born with HIV or born exposed to HIV. The network’s studies follow newborns, young children, adolescents, young adults, and women affected by HIV.
2005
2006
2006
The founding Principal Investigators of PHACS, Drs. George Seage and Russell Van Dyke, speak about the importance and impact of PHACS research.
2009
The Pediatric HIV/AIDS Cohort Study’s first national Community Advisory Board (CAB) is founded.
The mission of the PHACS CAB is to serve as a connection between researchers and community members in order to improve and optimize clinical research studies for children/families who are participants, and who are most affected by the research.
Membership reflects the diversity of PHACS’ national clinical sites and includes women living with HIV, caregivers of young people living with HIV, and community members affected by HIV.
2009
2013
The Pediatric HIV/AIDS Cohort Study’s first national Young Adult Community Advisory Board (YACAB) is founded. They later rename themselves the Peers United Group (PUG).
The PUG includes adolescents and young adults with perinatal experience of HIV – either born with HIV, or born without HIV to a mother with HIV. The mission of this group is to provide guidance and perspective to researchers on how to make the overall PHACS study better for young adults who are participants and to offer relevant support to young adults involved in PHACS.
2013
2017
Dr. Ana Puga speaks about the impact of working with children living with HIV as a clinician.
2017
2014
PUG member Andrew talks about the importance of advocacy.
2014
2018
Community Member Maria talks about "making a difference" through PHACS.
2018
2018
Dr. Rohan Hazra of the Eunice Kennedy Shriver National Institute of Child Health and Human Development speaks about the importance of the longitudinal studies that the PHACS Network conducts.
2018
2020
The PHACS Network is awarded renewed funding as a Program Project, supporting our multidisciplinary, long-term research program to further investigate the safety of early antiretroviral and HIV exposure as our participants continue to age into adulthood. Both SMARTT and the AMP Up Series continue, along with a new protocol, TERBO BRAIN, investigating the long-term neurological impacts of early ARV and HIV exposures.
The Program Project also includes two new Cores, the Epidemiological and Statistical Methods Core and the Health Education and Community Core.
A team of four Principal Investigators lead the Program Project: Drs. Paige Williams, Ellen Chadwick, Jennifer Jao, and Sonia Hernandez-Diaz.
2020
2021
Painting: Michelle Benne
2021
Dr. George Seage, one of the founding co-Principal Investigators of PHACS, passes away.
Dr. Seage was an epidemiologist at Harvard T.H. Chan School of Public Health who worked in the field of HIV since the beginning of the epidemic. He served as the first director of the Massachusetts AIDS Surveillance Program, published over 200 papers during his career, and brought insight, brilliance, and empathy to his research.
“George was an exemplary leader and advocate for people living with HIV/AIDS. He was a gifted scientist whose contributions will continue to inspire many generations of scholars, myself included. He was also our very own advocate, who took PHACS to unimaginable places and levels.
We are so grateful to him.”
- Dr. Mariam Davtyan,
University of Southern California site
The timeline above is presented for educational purposes only. We do not own the copyright to any of the written, audio, and/or visual media presented in the timeline. PHACS does not endorse any organizations or viewpoints of sources. Where possible, specific dates have been provided in chronological order.
All sources can be found here. The timeline is regularly checked to ensure accuracy, but due to the growing nature of the timeline, some inaccuracies may occur. For suggestions, corrections, or all other inquiries please email phacs.hecc.leadership@fstrf.org
2024
Community member Lenny shares a guide to navigating health insurance with HIV.
2024
"Managing health insurance when you have
HIV can be a bit tricky, but there are ways to make it easier.
This essay aims to provide practical advice for managing health insurance, tailored specifically for individuals living with HIV."
